We are all born, we all live, we all die. It's a simple journey, but one fraught with potential difficulties, that are made simpler by our need to rely on each other.
That reliance begins when we are babies. We are born so helpless, we all need the care of parents twenty four hours a day to survive. For the majority, the need for physical care reduces over the years, and by the time we leave home, our reliance on family is mainly emotional, and practical. By then, if we are lucky, we have developed self reliance, independence, an ability to get along in the world. But we never lose the need for friendship and family: the people with whom we share our joys, hopes, aspirations, the people who we still rely on in our darkest hours.
For some, full self-reliance is never possible. Some are born with a disability/disabilities or chronic illness that means they will need physical and emotional support throughout life. All of us face the chance that we might become sick or disabled in later life, requiring major life changes and a recognition that things will be different from here on. But that doesn't mean life can't be lived to the full. With the right supports from friends and family, with the right amount of state funding they can be in control of, people who are sick or disabled live important, creative lives, full of hope and possibility.
And, of course, all of us, no matter how healthy and independent we are in our youth and middle years, there will come to a point where we begin to fade. Gradually we will find our joints aren't as flexible. We will suffer minor health crises that become major ones. We will learn to become more dependant on family and friends as we lose the ability to drive, to cook, to walk. Yet, even then, life is precious. If we have support and are surrounded by those who love us, we can still find pleasure in the simple things - listening to music on the radio, watching grandchildren play in the garden, a visit from an old friend.
With the right resources, a good life is always possible - even in the most adverse circumstances - as Sue Marsh articulates so clearly here. And yet, there will come a point for all of us when the pain, the loss of independence, the indignity, the sheer hard grind of it all becomes too much. What should we do then? How is life possible in such circumstances? Should it be allowed to continue in such circumstances?
The Right to Die movement believes that it shouldn't, that in the final moments, we all should have the choice of when we leave this world and that our families and friends should be able to help us without impunity. I know many good people who believe in this campaign, and believe we need to legislate for legalised assisted suicide. I have some sympathy with their views - none of us want to face indignity at the end, none of us want to be a burden to family and friends, and if someone we love begs for help to die, wouldn't we be hard hearted to respond?
I would never want to condemn someone who makes that choice, or someone who helps a friend or family member make that choice. And I don't believe justice is served by punishing those who help people they love in this way. But I can't support it being made into law, partly because I believe that end of life would be improved for everyone if the kind of care available in hospices was normal. Partly because I think the legal guidance as it stands, makes it possible for people who disagree with me to undertake assisted suicide even though they are technically breaking the law. And partly I can't support the legalisation of euthanasia because of the possible unintended consequences, particularly at the moment. Because, no matter how good the intent, no matter how many guarantees may be in place, once the state says it is legal to carry out assisted suicide, it becomes easier for the state to intervene in other situations. Right now, that's a very scary prospect for people with disabilities, chronic illnesses and their allies. The era of austerity has resulted in an unprecedented rise in hostility to disabled people, the highest rates of disabled hate crime recorded and as disabled and sick people struggling to survive as they bear the brunt of the cuts. When Colin Brewer, a Cornwall Councillor said disabled children should be put down because they cost too much it was good to see that he was condemned. However, he is not alone, Geoffrey Clark, a UKIP candidate has expressed similar views, and how many more agree in private? No wonder Baroness Campbell told the House of Lords earlier this year in a debate on assisted suicide this is a dangerous time to consider legalising euthanasia. The shadow of the Nazis T4 programme still hangs over disabled and sick people - and sadly, I no longer believe it could never happen here.
It doesn't have to though. If enough of us work together to make sure the rights of sick and disabled people are always at the forefront of society. If enough of us, work together to ensure everyone who requires support gets it. If enough of us recognise that we all rely on each other to survive.
Because everyone has the right to life. And everyone has the capacity to live the fullest life possible.
All it takes is a little bit of support.
Thursday, 1 May 2014
Tuesday, 15 April 2014
End Hunger Fast - Week 6
My last fast proved remarkably easy, in that I didn't feel too hungry most of the day, and the last few hours didn't feel like a countdown for once. There were however, several moments when I felt low and close to tears, as I had done previously, which confirms for me that going without food is not good for anyone.
Friday's fast was in memory of Karen Sherlock, another person who suffered from the horrors of the work capability assessment. I've written about Karen before because although I never met her, we spoke several times on social media, and she was keen to share her story with the Atos Stories project. Like many, I followed her fight to be placed in the support group where she could claim Employment Support Allowance without being put under pressure. And like many I was horrified that any system could be so inhumane to find a person needing regular dialysis with multiple health problems, fit for work. I was further horrified to discover that Karen was also the victim of a particular piece of cruelty of the welfare reform act, losing her ESA because she'd been placed in work related activity for a year. So I was delighted by her announcement that she'd finally won her battle.
Sadly, Karen died less than a fortnight later; another person whose last months had been made more stressful by the Work Capability Assessment process. Another person struggling for the right to have enough money to live not comfortably, but sufficient for her needs. Another person whose complex mix of conditions - diabetes, heart, kidney problems - meant having enough money to buy the right food was so important.
Karen's story is unfortunately not an isolated one; and whilst disabled and sick people are bearing the brunt of the food crisis, so too are families on low incomes and benefits. I took part in End Hunger Fast to help raise awareness of Karen and all the people like her who struggle for the right to have a basic income sufficient for their needs. A struggle that would be unnecessary if politicians had stopped and listened to the many voices raised in protest as the Welfare Reform Act was forced through Parliament two years ago. A struggle that could be over if politicians started listening now. They could start by listening to the voices of disabled people reflected in the new "Beyond the Barriers" report published last week by the Spartacus network, which clearly sets out how providing the right support for people is not only the right thing to do morally, but also economically and brings value to the taxpayer. They could listen to the voices of the Trussell Trust who today published figures demonstrating a 163% rise in the numbers of people using foodbanks this year. They could listen to the End Hunger Fast campaigners who have fasted in so many ways this Lent and who will be vigilling outside Parliament tonight as the fast comes to an end.
Most of all they could take heed of the message behind the "Beyond the Barriers" report - "Work for those who can. Security for those who can’t. Support for all" - because that is what a decent society should look like.
Keith and Simon finished their phenomenal 40 day fast at the weekend, Scott finishes his today. If you're in London today you can join the End Hunger Fast vigil at Old Palace Yard, Westminster, at 6pm.
Friday's fast was in memory of Karen Sherlock, another person who suffered from the horrors of the work capability assessment. I've written about Karen before because although I never met her, we spoke several times on social media, and she was keen to share her story with the Atos Stories project. Like many, I followed her fight to be placed in the support group where she could claim Employment Support Allowance without being put under pressure. And like many I was horrified that any system could be so inhumane to find a person needing regular dialysis with multiple health problems, fit for work. I was further horrified to discover that Karen was also the victim of a particular piece of cruelty of the welfare reform act, losing her ESA because she'd been placed in work related activity for a year. So I was delighted by her announcement that she'd finally won her battle.
Sadly, Karen died less than a fortnight later; another person whose last months had been made more stressful by the Work Capability Assessment process. Another person struggling for the right to have enough money to live not comfortably, but sufficient for her needs. Another person whose complex mix of conditions - diabetes, heart, kidney problems - meant having enough money to buy the right food was so important.
Karen's story is unfortunately not an isolated one; and whilst disabled and sick people are bearing the brunt of the food crisis, so too are families on low incomes and benefits. I took part in End Hunger Fast to help raise awareness of Karen and all the people like her who struggle for the right to have a basic income sufficient for their needs. A struggle that would be unnecessary if politicians had stopped and listened to the many voices raised in protest as the Welfare Reform Act was forced through Parliament two years ago. A struggle that could be over if politicians started listening now. They could start by listening to the voices of disabled people reflected in the new "Beyond the Barriers" report published last week by the Spartacus network, which clearly sets out how providing the right support for people is not only the right thing to do morally, but also economically and brings value to the taxpayer. They could listen to the voices of the Trussell Trust who today published figures demonstrating a 163% rise in the numbers of people using foodbanks this year. They could listen to the End Hunger Fast campaigners who have fasted in so many ways this Lent and who will be vigilling outside Parliament tonight as the fast comes to an end.
Most of all they could take heed of the message behind the "Beyond the Barriers" report - "Work for those who can. Security for those who can’t. Support for all" - because that is what a decent society should look like.
Keith and Simon finished their phenomenal 40 day fast at the weekend, Scott finishes his today. If you're in London today you can join the End Hunger Fast vigil at Old Palace Yard, Westminster, at 6pm.
Saturday, 5 April 2014
End Hunger Fast - Week 5: National Day of Fasting
I have to admit I was sort of looking forward to this fast as it is always much easier to do something difficult when you are joining thousands of people who think and believe as you do. I'd also foolishly anticipated my fifth fast wouldn't be so hard, as each week has become progressively easier. However, it didn't turn out like that - yesterday was as demanding as the very first fast I made on Ash Wednesday. I'm not quite sure why - it might be down to my life being quite stressful at the moment; or that I hadn't recovered from a 5hr round trip on Mother's Day; or that I had one too many glasses of white wine the night before. Whatever the reason, I woke up with a raging headache and nausea interspersed with strong hunger pains. And though it was a boost to see so many people on Facebook and Twitter posting pictures of their empty bowls and plates, I left for work feeling weak and feeble.
It didn't get much better during the day. We'd agreed to provide lunch for some guests, so I spent an hour in a meeting where everyone else was eating apart from me. This was followed by a bring and share lunch for a highly respected colleague who was retiring. I couldn't not go, but watching others eat, smelling the delicious food was challenging to say the least. By the time I got home, I was faint with hunger, which was the point when I realised that I'd not taken the vegetable stock drink I normally have. (It's my remedy for recovering from tummy bugs, as it provides the illusion of eating and injects a bit of salt in the body). That seemed to help a bit, as did checking in the National Day of Fasting Facebook page and catching up with others who were definitely feeling the same or worse.
I normally find the last few hours of the fast the hardest, but they were made easier this week by me having a busy evening. My son was lighting a stage show so needed dropping off, after which it was time for prayers in Church. Each week through Lent, our parish comes together to meditate on the Stations of the Cross - the stages of Jesus' journey to death - followed by silent prayer. This week the hour of prayer was for all those who go hungry - the bags of food in the food-bank box a reminder of the food poverty in our local community. It's been a while since I've done Stations of the Cross, and the simple meditation by Pope Francis, was both a powerful prayer, and a reminder to me that Jesus through his life and death continually calls us to act with justice.
I left early to head down to Pegasus Theatre to see the show my son was lighting. "Stories for Survival" was an ambitious piece of theatre by anyone's standards - a re-working of "The Arabian Nights" through drama, dance and music, reflecting on violence, forgiveness, political repression, and the struggle for refugees to survive. What was most impressive was that the performers, composers, stage designers, technical crew were all young people. It was wonderful to see their commitment to the work and I found it particularly poignant, in a week when 18 year old Yashika Bageerathi was forcibly deported in brutal circumstances, a victim of anti immigrant scaremongering, despite the brilliant campaigning of her class mates.
"Stories for Survival" also seems an apposite title for many people in this country today. The people who are living hand to mouth on zero hours contracts that never guarantee a steady income. The people who live on just above the minimum wage, struggling to get by. Those whose housing benefit has been capped, so ends never meet however far they stretch them. The people who are the recipients of the thousand and one cuts of that cruellest of acts, the 2012 Welfare Reform Act. So many struggling to survive with dignity and respect, whilst the rich get richer, politicians turn their backs and the media denigrates them.
One person who sadly didn't survive was Paul Reekie. Paul, like me, was 48. Like me, Paul was a writer, and by all accounts a fine one. In later years, he struggled with depression, a heart condition and may have been the victim of assault. He committed suicide in the summer of 2010, when his incapacity benefit and housing benefit were withdrawn following a work capability assessment. He left no note, but the letters from the DWP announcing their decision were found close to his body, and his friends were quick to point out his meaning was clear. His publisher was so horrified, he even took the step of writing to George Osborne:
Sadly George ignored him. For the last four years, he has promoted a economic policy driven by the myth that the welfare state is too expensive, and needs to be cut in order to reduce the deficit. He continues to ignore too, that the policy is not only inhumane, it's not working. Since the Coalition Government has come into power the national debt has increased not decreased . And yet the cuts keep coming, and human cost will continue to rise as a result.
All of which is why End Hunger Fast matters as a campaign, and why we need to keep campaigning when the fasting is done.This week the All Parliamentary Party Group on Hunger and Food Poverty launched an inquiry into the growth of food banks, attended by our very own Keith Hebden. Despite some crass comments from one Tory MP, the fact the committee recognises the importance of researching food poverty is an important step in changing hearts and minds in Parliament. A little sign of hope that we're beginning to make a difference. And a sign that we shouldn't let up.
The National Day of Fasting may be over, but Keith Hebden, Simon Cross and Scott Albrecht are still at it. Their forty day fast will continue till Palm Sunday (13th April 2014). You can help by cheering them on via social media, by telling as many people as you can about their witness and by taking action as recommended on the End Hunger Fast website. And keep on acting once Lent is over.
For - as End Hunger Fast say on their website - food poverty is a national and moral crisis. It is time we made sure politicians on all sides of the political spectrum started paying attention to this crisis. In 2010, buoyed by a sense that the public wanted economic stability, George Osborne could ignore the warning of Paul Reekie's death, and declare austerity was the only solution to the financial crisis. Let's make 2014 the year the human cost of the cuts becomes clear to the nation. The year public opinion begins to change on welfare. The year politicians disregard this moral crisis at their peril.
It didn't get much better during the day. We'd agreed to provide lunch for some guests, so I spent an hour in a meeting where everyone else was eating apart from me. This was followed by a bring and share lunch for a highly respected colleague who was retiring. I couldn't not go, but watching others eat, smelling the delicious food was challenging to say the least. By the time I got home, I was faint with hunger, which was the point when I realised that I'd not taken the vegetable stock drink I normally have. (It's my remedy for recovering from tummy bugs, as it provides the illusion of eating and injects a bit of salt in the body). That seemed to help a bit, as did checking in the National Day of Fasting Facebook page and catching up with others who were definitely feeling the same or worse.
I normally find the last few hours of the fast the hardest, but they were made easier this week by me having a busy evening. My son was lighting a stage show so needed dropping off, after which it was time for prayers in Church. Each week through Lent, our parish comes together to meditate on the Stations of the Cross - the stages of Jesus' journey to death - followed by silent prayer. This week the hour of prayer was for all those who go hungry - the bags of food in the food-bank box a reminder of the food poverty in our local community. It's been a while since I've done Stations of the Cross, and the simple meditation by Pope Francis, was both a powerful prayer, and a reminder to me that Jesus through his life and death continually calls us to act with justice.
I left early to head down to Pegasus Theatre to see the show my son was lighting. "Stories for Survival" was an ambitious piece of theatre by anyone's standards - a re-working of "The Arabian Nights" through drama, dance and music, reflecting on violence, forgiveness, political repression, and the struggle for refugees to survive. What was most impressive was that the performers, composers, stage designers, technical crew were all young people. It was wonderful to see their commitment to the work and I found it particularly poignant, in a week when 18 year old Yashika Bageerathi was forcibly deported in brutal circumstances, a victim of anti immigrant scaremongering, despite the brilliant campaigning of her class mates.
"Stories for Survival" also seems an apposite title for many people in this country today. The people who are living hand to mouth on zero hours contracts that never guarantee a steady income. The people who live on just above the minimum wage, struggling to get by. Those whose housing benefit has been capped, so ends never meet however far they stretch them. The people who are the recipients of the thousand and one cuts of that cruellest of acts, the 2012 Welfare Reform Act. So many struggling to survive with dignity and respect, whilst the rich get richer, politicians turn their backs and the media denigrates them.
One person who sadly didn't survive was Paul Reekie. Paul, like me, was 48. Like me, Paul was a writer, and by all accounts a fine one. In later years, he struggled with depression, a heart condition and may have been the victim of assault. He committed suicide in the summer of 2010, when his incapacity benefit and housing benefit were withdrawn following a work capability assessment. He left no note, but the letters from the DWP announcing their decision were found close to his body, and his friends were quick to point out his meaning was clear. His publisher was so horrified, he even took the step of writing to George Osborne:
"It has come to my attention that while many of my
friends and I were at the funeral of our good friend Paul Reekie, aged 48, it
would appear that you were giving a speech in Parliament announcing your
intentions to slash the benefits paid to the poorest and most vulnerable in our
society.
"I thought I would let you know that Paul took his own
life. He didn't leave a note but he laid out two letters on his table. One was
notifying him that his housing benefit had been stopped. The other was
notifying him that his incapacity benefit had been stopped.
"The reason I'm writing this letter is just so you know
the human cost of attacking those on benefits."
Sadly George ignored him. For the last four years, he has promoted a economic policy driven by the myth that the welfare state is too expensive, and needs to be cut in order to reduce the deficit. He continues to ignore too, that the policy is not only inhumane, it's not working. Since the Coalition Government has come into power the national debt has increased not decreased . And yet the cuts keep coming, and human cost will continue to rise as a result.
All of which is why End Hunger Fast matters as a campaign, and why we need to keep campaigning when the fasting is done.This week the All Parliamentary Party Group on Hunger and Food Poverty launched an inquiry into the growth of food banks, attended by our very own Keith Hebden. Despite some crass comments from one Tory MP, the fact the committee recognises the importance of researching food poverty is an important step in changing hearts and minds in Parliament. A little sign of hope that we're beginning to make a difference. And a sign that we shouldn't let up.
The National Day of Fasting may be over, but Keith Hebden, Simon Cross and Scott Albrecht are still at it. Their forty day fast will continue till Palm Sunday (13th April 2014). You can help by cheering them on via social media, by telling as many people as you can about their witness and by taking action as recommended on the End Hunger Fast website. And keep on acting once Lent is over.
For - as End Hunger Fast say on their website - food poverty is a national and moral crisis. It is time we made sure politicians on all sides of the political spectrum started paying attention to this crisis. In 2010, buoyed by a sense that the public wanted economic stability, George Osborne could ignore the warning of Paul Reekie's death, and declare austerity was the only solution to the financial crisis. Let's make 2014 the year the human cost of the cuts becomes clear to the nation. The year public opinion begins to change on welfare. The year politicians disregard this moral crisis at their peril.
Saturday, 29 March 2014
End Hunger Fast - Week 4.
This week was my fourth fast for End Hunger Fast, which, felt in some ways easier than others. I had hunger pangs in the morning, and for the last hour, but for most of the day found myself not thinking too much about food. I did, however, feel quite mentally weak; particularly because my day began with a pretty stressful work issue that almost had me in tears before I reached the office. All of which leads me to conclude that most people can get used to anything - if you go hungry often, your body is likely to adjust- but in the long term it's never going to be good for your physical and emotional well being.
For yesterday's fast I chose to remember a man who is only known to campaigners as George from Chesterfield due to this article in 2011. I remembered George, because it is his story that brought Atos and the Work Capability Assessment to my attention, kick-starting the Atos Stories project. Despite having a heart condition, angina and regular chest pain, Atos found him fit to work, requiring him to be placed on Job Seeker's Allowance and look for a job. Eight months later he won his appeal and was placed in the work related activity group, enabling him to claim Employment Support Allowance. But due to the constant reassessment required by the DWP, he was soon called in for another medical. He died of a heart attack the day before he was due to attend, his widow convinced the stress killed him.
George did not die of hunger; unlike some of the people I have been remembering in my fasts, his cupboards weren't totally bare. But, even on £90/week and whatever income his wife brought in, it is likely that food was a struggle. And the fear of that benefit being reduced by £30/week - a significant reduction for a low income family that would surely have added pressure to their budget - must have contributed to the stress that was a factor in his death.
Since I read George's story, I've lost count of the amount of people who have died from Atos-induced stress, hunger, or fear. Not surprisingly really, the DWP's own figures (before they stopped producing them) suggested that 32 people were dying each week after being placed in work related activity group. It's a national scandal, which is now firmly in the public eye thanks to the brilliant campaigning of Black Triangle, Disabled People Against Cuts, Kaliya Franklin, Sue Marsh and others. In fact the WCA has become so toxic that Atos finally pulled out of the contract this week. Of course that won't stop the cruelty and chaos of the scheme, but it is a start.
And a start is what we need; because despite the progress we've made in campaigning on welfare issues, we've a long way to go. This week, for the first time ever the House of Commons, voted to cap welfare. A move initiated by the government, and disgracefully supported by Labour. By their own admission, this was less about ideology and more about playing politics. According to my MP's response to my request he rebel, Labour seems prouder of not falling into the Daily Mail trap they believe Osborne had set up for them, then their lack of positive alternatives to welfare austerity. Sadly, the party that set up the welfare state is still too scared to articulate the strong moral argument for a social security system that takes care of those in need. I can see that they believe appealing to the middle is the only way they're going to win the next election, but we aren't going to end hunger that way. And judging from the latest opinion polls pandering to the right isn't doing them much good either.
For too many years politicians on all sides, have continued to promote the lie that the welfare system is a burden on the taxpayer. A lie that has led to a situation of such dire food poverty that 500,000 people sought the help of food banks last year, whilst 5,500 people were admitted to hospital for malnutrition. If we are to make a change from the toxic politics of WCA, workfare, sanctions, bedroom tax that have caused this mass hunger, it is time we had a changed narrative. One that restores a belief in social security for everyone who loses their job, becomes sick, or ends up a single parent. One that says that in a rich nation, no child should starve, no disabled or sick person should live in fear of medical assessment, no adult should be anxious about how to pay their bills. Labour, as the main opposition party, is in the perfect position to shape this narrative, yet it cowers in the corner too afraid to speak out. If we want real change in this country it is high time that Labour stops playing politics, ditches its neoliberal shadow chancellor and develops some real balls.
I happened to be in London on Thursday morning, in time to see Tony Benn's funeral cortege. It was moving to see how much he meant to so many, how his commitment to social justice had such an impact. Among the many banners on display, one jumped out at me. It said something to the effect that Benn stood up for the poor, the discriminated against; he was on the side of the people. I hope Ed Miliband and his team saw that sign when he went into church. I hope they recognised that the affection felt for Benn was due to his moral stance on so many issues, and his willingness to speak the truth even when it made him unpopular. And I hope they can begin to see that the only way out of the mess this country is in, is if they stop being scared, and become a party of the people once more. A party that places justice before politics, principle before media sound-bites, and acts on behalf of those most in need.
This week Keith Hebden, Scott Albrecht and Simon Cross passed the halfway point of their 40 day fast for End Hunger Fast. On Friday they are inviting us all to join them as part of a national day of fasting. I'll be fasting for the fifth time, remembering another welfare victim as I do. If it's at all possible, please consider joining us if you can.
#Fast4thApril #EndHungerFast
For yesterday's fast I chose to remember a man who is only known to campaigners as George from Chesterfield due to this article in 2011. I remembered George, because it is his story that brought Atos and the Work Capability Assessment to my attention, kick-starting the Atos Stories project. Despite having a heart condition, angina and regular chest pain, Atos found him fit to work, requiring him to be placed on Job Seeker's Allowance and look for a job. Eight months later he won his appeal and was placed in the work related activity group, enabling him to claim Employment Support Allowance. But due to the constant reassessment required by the DWP, he was soon called in for another medical. He died of a heart attack the day before he was due to attend, his widow convinced the stress killed him.
George did not die of hunger; unlike some of the people I have been remembering in my fasts, his cupboards weren't totally bare. But, even on £90/week and whatever income his wife brought in, it is likely that food was a struggle. And the fear of that benefit being reduced by £30/week - a significant reduction for a low income family that would surely have added pressure to their budget - must have contributed to the stress that was a factor in his death.
Since I read George's story, I've lost count of the amount of people who have died from Atos-induced stress, hunger, or fear. Not surprisingly really, the DWP's own figures (before they stopped producing them) suggested that 32 people were dying each week after being placed in work related activity group. It's a national scandal, which is now firmly in the public eye thanks to the brilliant campaigning of Black Triangle, Disabled People Against Cuts, Kaliya Franklin, Sue Marsh and others. In fact the WCA has become so toxic that Atos finally pulled out of the contract this week. Of course that won't stop the cruelty and chaos of the scheme, but it is a start.
And a start is what we need; because despite the progress we've made in campaigning on welfare issues, we've a long way to go. This week, for the first time ever the House of Commons, voted to cap welfare. A move initiated by the government, and disgracefully supported by Labour. By their own admission, this was less about ideology and more about playing politics. According to my MP's response to my request he rebel, Labour seems prouder of not falling into the Daily Mail trap they believe Osborne had set up for them, then their lack of positive alternatives to welfare austerity. Sadly, the party that set up the welfare state is still too scared to articulate the strong moral argument for a social security system that takes care of those in need. I can see that they believe appealing to the middle is the only way they're going to win the next election, but we aren't going to end hunger that way. And judging from the latest opinion polls pandering to the right isn't doing them much good either.
For too many years politicians on all sides, have continued to promote the lie that the welfare system is a burden on the taxpayer. A lie that has led to a situation of such dire food poverty that 500,000 people sought the help of food banks last year, whilst 5,500 people were admitted to hospital for malnutrition. If we are to make a change from the toxic politics of WCA, workfare, sanctions, bedroom tax that have caused this mass hunger, it is time we had a changed narrative. One that restores a belief in social security for everyone who loses their job, becomes sick, or ends up a single parent. One that says that in a rich nation, no child should starve, no disabled or sick person should live in fear of medical assessment, no adult should be anxious about how to pay their bills. Labour, as the main opposition party, is in the perfect position to shape this narrative, yet it cowers in the corner too afraid to speak out. If we want real change in this country it is high time that Labour stops playing politics, ditches its neoliberal shadow chancellor and develops some real balls.
I happened to be in London on Thursday morning, in time to see Tony Benn's funeral cortege. It was moving to see how much he meant to so many, how his commitment to social justice had such an impact. Among the many banners on display, one jumped out at me. It said something to the effect that Benn stood up for the poor, the discriminated against; he was on the side of the people. I hope Ed Miliband and his team saw that sign when he went into church. I hope they recognised that the affection felt for Benn was due to his moral stance on so many issues, and his willingness to speak the truth even when it made him unpopular. And I hope they can begin to see that the only way out of the mess this country is in, is if they stop being scared, and become a party of the people once more. A party that places justice before politics, principle before media sound-bites, and acts on behalf of those most in need.
This week Keith Hebden, Scott Albrecht and Simon Cross passed the halfway point of their 40 day fast for End Hunger Fast. On Friday they are inviting us all to join them as part of a national day of fasting. I'll be fasting for the fifth time, remembering another welfare victim as I do. If it's at all possible, please consider joining us if you can.
#Fast4thApril #EndHungerFast
Saturday, 22 March 2014
End Hunger Fast - Week 3
This week, inspired by the Bishops of Oxford I chose budget day to fast. In the run up to Wednesday, as I read about Osborne's plans for 2014 and beyond, I found myself recalling his first budget in June 2010. At the time of that budget, in the honeymoon period when most people seemed to think the coalition was a good thing, there was an article on the BBC website asking for comments. I signed in to say that his plans made me afraid for the future of public services, and in particular for the future of people with disabilities who I feared would be at the forefront of any cuts. I hoped that I would be proved wrong; sadly I wasn't
Eighteen months after that budget, Helen and Mark Mullins took their lives after struggling to live on £57.50 a week. The reason for their limited income cannot be laid wholly at the coalition's door. They were trapped in a Kafkaesque situation where Helen was deemed not fit to work and therefore unable to claim JSA, but lacked a medical diagnosis for her learning disabilities that would have enabled her to claim incapacity benefit. Helen should have been offered support from Social Services, but somehow fell through the net. Given that all political parties apart from the Greens are wedded to austerity budgets, it is quite possible they'd have had the same experience under a Labour government and made the same choice to die. However, one thing that can't be disputed is that Helen and Mark were victims of an increasingly punitive approach to people claiming benefits. An approach begun by Thatcher, perpetuated by new Labour and accelerated by Cameron, Osborne and Duncan Smith. Nor can it be disputed that Osborne's approach to cutting the deficit is the most vicious of any Chancellor, hitting sick and disabled people more than any other groups in society. It is also clear that the cause of their suicide - no longer being able to cope with living off a few vegetables donated by the soup kitchen as they huddled for warmth in one room - has become more common place in the last four years.
I spent my day's fast thinking of Mark and Helen, praying as I did so that this year we had a budget with humanity, a budget that recognised the impact of cuts on the poor, a budget that would end hunger today. Unfortunately my prayer was not answered. Instead I was forced to listen to George Osborne boasting of his economic achievements (a tiny recovery spun as growth, a deficit that has increased since 2010). As the evening progressed, I became increasingly angry, the sick feeling in my stomach, partly due to hunger and partly due to disgust at his refusal to acknowledge the needs of the country. The most depressing moment of all was realising that the proposal to cap the benefits bill, was not only going to be made into primary legislation to ensure it continues for the next four years, but will be supported by Labour. In other words, when the money for welfare runs out, as it undoubtedly will, there will be more no more left for those in need. So we will see more queues at the foodbanks, more people go hungry, more suicides, whilst wealthy politicians on all sides of the house stand by and let it happen.
As with last week, the last couple hours of my fast were difficult; I was hungry, I felt sick and I was raging. And then something rather wonderful happened. Grant Shapps tweeted what must rank as one of the most crass political messages ever, celebrating the cut in tax duty "to help hardworking people do more of the things they enjoy." After a quick check that it wasn't a spoof, Twitter and Facebook was soon full of hilarious parody versions (this was my particular favourite). Suddenly, angry and sick as I was, I began to laugh and laughing felt good. Because four years ago, when I commented on the BBC website, I felt isolated and alone, drowned out by waves of people celebrating attacks on the workshy. On Wednesday "Torybingo" made me realise that, despite the lies of this government, the majority of people know exactly what we are up against. And that's more than a little encouraging.
In the mean time, we can keep doing all we can to raise awareness of these issues. Keith, Simon and Scott are on day 18 of their fast, nearly half way through. I'll be fasting again next week, and everyone is invited to join in the National Day of Fasting on 4th April.
So please help us, by fasting if you can, and if you can't, please help by spreading the word. Together we can End Hunger Fast.
Eighteen months after that budget, Helen and Mark Mullins took their lives after struggling to live on £57.50 a week. The reason for their limited income cannot be laid wholly at the coalition's door. They were trapped in a Kafkaesque situation where Helen was deemed not fit to work and therefore unable to claim JSA, but lacked a medical diagnosis for her learning disabilities that would have enabled her to claim incapacity benefit. Helen should have been offered support from Social Services, but somehow fell through the net. Given that all political parties apart from the Greens are wedded to austerity budgets, it is quite possible they'd have had the same experience under a Labour government and made the same choice to die. However, one thing that can't be disputed is that Helen and Mark were victims of an increasingly punitive approach to people claiming benefits. An approach begun by Thatcher, perpetuated by new Labour and accelerated by Cameron, Osborne and Duncan Smith. Nor can it be disputed that Osborne's approach to cutting the deficit is the most vicious of any Chancellor, hitting sick and disabled people more than any other groups in society. It is also clear that the cause of their suicide - no longer being able to cope with living off a few vegetables donated by the soup kitchen as they huddled for warmth in one room - has become more common place in the last four years.
I spent my day's fast thinking of Mark and Helen, praying as I did so that this year we had a budget with humanity, a budget that recognised the impact of cuts on the poor, a budget that would end hunger today. Unfortunately my prayer was not answered. Instead I was forced to listen to George Osborne boasting of his economic achievements (a tiny recovery spun as growth, a deficit that has increased since 2010). As the evening progressed, I became increasingly angry, the sick feeling in my stomach, partly due to hunger and partly due to disgust at his refusal to acknowledge the needs of the country. The most depressing moment of all was realising that the proposal to cap the benefits bill, was not only going to be made into primary legislation to ensure it continues for the next four years, but will be supported by Labour. In other words, when the money for welfare runs out, as it undoubtedly will, there will be more no more left for those in need. So we will see more queues at the foodbanks, more people go hungry, more suicides, whilst wealthy politicians on all sides of the house stand by and let it happen.
As with last week, the last couple hours of my fast were difficult; I was hungry, I felt sick and I was raging. And then something rather wonderful happened. Grant Shapps tweeted what must rank as one of the most crass political messages ever, celebrating the cut in tax duty "to help hardworking people do more of the things they enjoy." After a quick check that it wasn't a spoof, Twitter and Facebook was soon full of hilarious parody versions (this was my particular favourite). Suddenly, angry and sick as I was, I began to laugh and laughing felt good. Because four years ago, when I commented on the BBC website, I felt isolated and alone, drowned out by waves of people celebrating attacks on the workshy. On Wednesday "Torybingo" made me realise that, despite the lies of this government, the majority of people know exactly what we are up against. And that's more than a little encouraging.
In the mean time, we can keep doing all we can to raise awareness of these issues. Keith, Simon and Scott are on day 18 of their fast, nearly half way through. I'll be fasting again next week, and everyone is invited to join in the National Day of Fasting on 4th April.
So please help us, by fasting if you can, and if you can't, please help by spreading the word. Together we can End Hunger Fast.
Saturday, 15 March 2014
End Hunger Fast - Week 2
When I was in my mid-twenties, I experienced a period of uncertain employment and very low wages. It happened to coincide with interest rates rising to a staggering 15% that doubled my mortgage within months and left me struggling to pay the bills. I was fortunate to have enough emotional resilience to pull myself through a difficult time, and a strong network of family and friends to help me out when the going got really tough. Nevertheless, I spent over a year with my outgoings exceeding my income - not because I was profligate - but because I just wasn't earning enough to cater for my basic needs. It wasn't poverty, but it was close and for a long time I teetered on the brink. It was a life of difficult choices - did I pay the electricity bill or let it go red so I could stock up my meagre food cupboard? Did I buy a travel-card, or cycle the 18 mile round trip to work so I had enough to pay the mortgage? When I eventually landed a job that set me back on track, the debts I incurred took five years to clear, and I was on the credit blacklist for even longer.
I'm grateful for that experience, difficult as it was, for giving me a small insight into the precariousness of life at the bottom end of the salary scale. It's easy when you live comfortably, as we do now, to forget that not everyone is as well off as us. And I guess, the really wealthy - like the coalition ministers who are making decisions about welfare cuts - are so far removed from that life that it is either beyond their imagination, or they just don't care. Either way, they seem to have no understanding of the impact of their policies and the way they affect ordinary people such as Stephanie Bottrill. Stephanie lived with the condition, mysasthenia gravis, an auto-immune disease that weakened the muscles, and required constant medication. In the past, this country recognised that people like Stephanie need support to survive, but under this coalition government, disabled and sick people are bearing the brunt of austerity cuts. Stephanie was one of thousands charged with the bedroom tax, an extra financial demand she simply couldn't afford. In the last few months of her life, she couldn't afford to heat her home, and was cutting back on food so much, all she had in the cupboard was tinned custard. Her life was so desperate, she walked in front of a lorry on the M6; another unnecessary welfare death made even poignant by the news that she should have actually been exempt.
Yesterday, I embarked on my second 24 hour fast for End Hunger Fast, remembering Stephanie as I did so. I was better prepared this week and didn't start feeling hungry till lunchtime. Nevertheless by the afternoon, I was exhausted and nauseous, and a trip to the shops with the children left me feeling stressed and angry. As the evening wore on, all I could think of was food, and when I could break my fast at 10.30. The last two hours were particularly difficult, and I was literally counting down the minutes till I could eat again. Once more I was grateful that I was able to go to bed with a full stomach, conscious that many aren't. And my experience on both fasting days, has provided a little insight into the other difficulties hunger brings - mood swings, lack of tolerance, an inability to make rational choices. No wonder Stephanie Bottrill - cold, hungry and faced with indefinite poverty - was in such despair she took her on life
David Cameron recently reminded us that Britain is a wealthy country, and that money should be no object when faced with the terrible consequences of flooding. A comment that puts the lie to the rhetoric of the last four years that austerity is necessary, that cuts are necessary and that welfare reform is necessary. It is time that he and his government step out from their comfortable, food-filled homes and walked amongst people who have nothing. It is time that money should be no object in addressing the needs of the poor. It is time for a return to the welfare safety net, work that pays and a restriction on rising food prices.
As part of End Hunger Fast, I will be fasting once a week, but Keith Hebden, Simon Cross and Scott Albrecht are fasting for the forty days of Lent. That's a pretty daunting prospect, so please do offer them your support on Twitter and Facebook. And on 4th April there will be a national day of fasting for anyone who wants to be part of this campaign.
Please join us if you can.
I'm grateful for that experience, difficult as it was, for giving me a small insight into the precariousness of life at the bottom end of the salary scale. It's easy when you live comfortably, as we do now, to forget that not everyone is as well off as us. And I guess, the really wealthy - like the coalition ministers who are making decisions about welfare cuts - are so far removed from that life that it is either beyond their imagination, or they just don't care. Either way, they seem to have no understanding of the impact of their policies and the way they affect ordinary people such as Stephanie Bottrill. Stephanie lived with the condition, mysasthenia gravis, an auto-immune disease that weakened the muscles, and required constant medication. In the past, this country recognised that people like Stephanie need support to survive, but under this coalition government, disabled and sick people are bearing the brunt of austerity cuts. Stephanie was one of thousands charged with the bedroom tax, an extra financial demand she simply couldn't afford. In the last few months of her life, she couldn't afford to heat her home, and was cutting back on food so much, all she had in the cupboard was tinned custard. Her life was so desperate, she walked in front of a lorry on the M6; another unnecessary welfare death made even poignant by the news that she should have actually been exempt.
Yesterday, I embarked on my second 24 hour fast for End Hunger Fast, remembering Stephanie as I did so. I was better prepared this week and didn't start feeling hungry till lunchtime. Nevertheless by the afternoon, I was exhausted and nauseous, and a trip to the shops with the children left me feeling stressed and angry. As the evening wore on, all I could think of was food, and when I could break my fast at 10.30. The last two hours were particularly difficult, and I was literally counting down the minutes till I could eat again. Once more I was grateful that I was able to go to bed with a full stomach, conscious that many aren't. And my experience on both fasting days, has provided a little insight into the other difficulties hunger brings - mood swings, lack of tolerance, an inability to make rational choices. No wonder Stephanie Bottrill - cold, hungry and faced with indefinite poverty - was in such despair she took her on life
David Cameron recently reminded us that Britain is a wealthy country, and that money should be no object when faced with the terrible consequences of flooding. A comment that puts the lie to the rhetoric of the last four years that austerity is necessary, that cuts are necessary and that welfare reform is necessary. It is time that he and his government step out from their comfortable, food-filled homes and walked amongst people who have nothing. It is time that money should be no object in addressing the needs of the poor. It is time for a return to the welfare safety net, work that pays and a restriction on rising food prices.
As part of End Hunger Fast, I will be fasting once a week, but Keith Hebden, Simon Cross and Scott Albrecht are fasting for the forty days of Lent. That's a pretty daunting prospect, so please do offer them your support on Twitter and Facebook. And on 4th April there will be a national day of fasting for anyone who wants to be part of this campaign.
Please join us if you can.
Sunday, 9 March 2014
End Hunger Fast - Week 1
When I first heard about End Hunger Fast, I thought long and hard about joining Keith Hebden and Simon Cross in fasting for forty days and nights. Like many people I am horrified that so many individuals and families are struggling to put food on the table, due to the coalition government's appalling welfare policies. So I was immediately attracted to the idea of fasting in solidarity with people who are hungry, to raise awareness of the issues. But, after careful consideration, I realised that a) I am not mentally and physically prepared for it and b) my life is too busy to fast safely. Instead, I decided that along with a friend from church, I will join the fast once a week. And, after a further conversation with Rick from the WOW Petition - and in keeping with the original intention of this blog - I have decided to remember a victim of welfare cuts each time I do so.
I was planning to begin on Friday. But on Ash Wednesday I realised since were we going away for the weekend it would be better to start immediately. This was not the wisest move. I have never fasted before, and I was not prepared at all. By mid-morning my stomach was rumbling, by lunch-time the smell of food from the work kitchen was agonisingly tempting and when I returned home from the school run, it took a supreme effort not to stuff down all the food that in my kitchen cupboards. Cooking tea was equally hard, and I thought of how many mothers must be doing this on a regular basis, skipping meals to make sure their kids are fed. As the evening wore on, I became increasingly grumpy and miserable. In fact, the only thing that kept me going was seeing how well the EHF launch had gone and knowing that I could eat soon (whereas for Simon and Keith this was just the beginning). At 11pm, I decided to break my fast. I hadn't eaten for 24 hours, and it just felt masochistic to go to bed hungry. Though, as I chomped on my two slices of toast, I reflected that many in food poverty do not have the luxury.
One person who didn't have such luxury was Mark Wood who lived in Bampton, Oxfordshire (in the Prime Minister's Witney constituency). Mark had mental health needs; when Atos found him fit to work, he was left with £40/week to live on, and was unable to pay his rent or utilities bills. Last August he starved to death. According to his doctor, “He was an extremely fragile individual who was coping with life.Something pushed him or affected him in the time before he died and the only thing I can put my finger on is the pressure he felt when his benefits were removed.” In other words, the welfare "reforms" of David Cameron's government were a significant factor in the death of one of his constituents.
Unlike Mark, I am one of society's lucky people. I have my health, my home and enough money to feed myself and my family. Joining End Hunger Fast is my way of expressing my outrage about what happened to him, and is happening to too many other people. Wednesday was hard, and I am not looking forward to my next fasting day. But as long as people are starving or struggling with the stress of constant hunger, it is beholden on we lucky ones to do what we can. For if we don't, who will?
For further information on End Hunger Fast and to sign up to the national day of fasting on the 4th April please check out their website.
If you'd like to find out more about Keith and Simon's fasts you can read about them here and here.
I was planning to begin on Friday. But on Ash Wednesday I realised since were we going away for the weekend it would be better to start immediately. This was not the wisest move. I have never fasted before, and I was not prepared at all. By mid-morning my stomach was rumbling, by lunch-time the smell of food from the work kitchen was agonisingly tempting and when I returned home from the school run, it took a supreme effort not to stuff down all the food that in my kitchen cupboards. Cooking tea was equally hard, and I thought of how many mothers must be doing this on a regular basis, skipping meals to make sure their kids are fed. As the evening wore on, I became increasingly grumpy and miserable. In fact, the only thing that kept me going was seeing how well the EHF launch had gone and knowing that I could eat soon (whereas for Simon and Keith this was just the beginning). At 11pm, I decided to break my fast. I hadn't eaten for 24 hours, and it just felt masochistic to go to bed hungry. Though, as I chomped on my two slices of toast, I reflected that many in food poverty do not have the luxury.
One person who didn't have such luxury was Mark Wood who lived in Bampton, Oxfordshire (in the Prime Minister's Witney constituency). Mark had mental health needs; when Atos found him fit to work, he was left with £40/week to live on, and was unable to pay his rent or utilities bills. Last August he starved to death. According to his doctor, “He was an extremely fragile individual who was coping with life.Something pushed him or affected him in the time before he died and the only thing I can put my finger on is the pressure he felt when his benefits were removed.” In other words, the welfare "reforms" of David Cameron's government were a significant factor in the death of one of his constituents.
Unlike Mark, I am one of society's lucky people. I have my health, my home and enough money to feed myself and my family. Joining End Hunger Fast is my way of expressing my outrage about what happened to him, and is happening to too many other people. Wednesday was hard, and I am not looking forward to my next fasting day. But as long as people are starving or struggling with the stress of constant hunger, it is beholden on we lucky ones to do what we can. For if we don't, who will?
For further information on End Hunger Fast and to sign up to the national day of fasting on the 4th April please check out their website.
If you'd like to find out more about Keith and Simon's fasts you can read about them here and here.
Tuesday, 4 March 2014
Moving on
As I posted last week, we are winning the argument against the Work Capability Assessment. When we started out back in 2011, not many people knew about Atos Healthcare. Now, it is a household name and not for good reasons. In fact - thanks to brilliant campaigning from Black Triangle, DPAC, Spartacus, Kaliya Franklin, Sue Marsh, Where's the Benefit? Mark Thomas and many more - it's become so toxic, it is pulling out of its DWP contract early. So it feels like this is the right time to be ending the Atos Stories project.
Since we wrote our plays they (or sections of them) have been performed in many places:
A tube train opposite the Olympics Stadium
Greenbelt
A Leeds Uncut demo
Recorded as a podcast by My Life My Choice
Been banned by Newham Council
In a variety of places and ways as part of a Mass Read
And wonderfully performed by Act Up! Newham as part of an event celebrating the legacy of the Paralympics and more recently for the launch of Newham CCG.
We're proud we helped to get the message out about Atos, and we're proud of what the campaign achieved. We're glad to have played our small part, and now it's time to bow out and move on to other things.
So the title of the blog is changing to Write to Protest and I will be using it to write about other campaigns I'm committed to. Starting with End Hunger Fast. I will be fasting one day a week throughout Lent and blogging about the experience, particularly remembering the victims of welfare reform who go hungry every day.
In the meantime we would like to say a huge thank you to the amazing people who shared their stories with us. We hope we did justice to them:
Huge thanks go to Yvonne Brouwers, Sterre Ploeger and everyone at Act Up! Newham who did a fantastic job on making the play accessible and getting it performed.
We would also like to thank the following for their help:
Amelia Gentleman, The Guardian
Patrick Collins
James Ivens, Flood Theatre
John McArdle Black Triangle
Linda Burnip & everyone at DPAC
Jon Peace News
Kaliya Franklin Benefit Scrounging Scum
Sue Marsh Diary of a Benefit Scrounger
Nelson DWP Examinations
John Moffatt
Liz Crow
Rick and Jane and everyone at the WOW Petition
Everyone who took part in the Mass Read
And everyone who has tweeted, facebooked and generally promoted our work
And finally, thanks to Lisa Chalkley the other half of the Collective, without which none of this would have been possible.
Judith Cole
Since we wrote our plays they (or sections of them) have been performed in many places:
A tube train opposite the Olympics Stadium
Greenbelt
A Leeds Uncut demo
Recorded as a podcast by My Life My Choice
Been banned by Newham Council
In a variety of places and ways as part of a Mass Read
And wonderfully performed by Act Up! Newham as part of an event celebrating the legacy of the Paralympics and more recently for the launch of Newham CCG.
We're proud we helped to get the message out about Atos, and we're proud of what the campaign achieved. We're glad to have played our small part, and now it's time to bow out and move on to other things.
So the title of the blog is changing to Write to Protest and I will be using it to write about other campaigns I'm committed to. Starting with End Hunger Fast. I will be fasting one day a week throughout Lent and blogging about the experience, particularly remembering the victims of welfare reform who go hungry every day.
In the meantime we would like to say a huge thank you to the amazing people who shared their stories with us. We hope we did justice to them:
David, Aletheia, Mary, Tim, Kate, Yvonne, Adam, Nelson, Elizabeth
Huge thanks go to Yvonne Brouwers, Sterre Ploeger and everyone at Act Up! Newham who did a fantastic job on making the play accessible and getting it performed.
We would also like to thank the following for their help:
Amelia Gentleman, The Guardian
Patrick Collins
James Ivens, Flood Theatre
John McArdle Black Triangle
Linda Burnip & everyone at DPAC
Jon Peace News
Kaliya Franklin Benefit Scrounging Scum
Sue Marsh Diary of a Benefit Scrounger
Nelson DWP Examinations
John Moffatt
Liz Crow
Rick and Jane and everyone at the WOW Petition
Everyone who took part in the Mass Read
And everyone who has tweeted, facebooked and generally promoted our work
And finally, thanks to Lisa Chalkley the other half of the Collective, without which none of this would have been possible.
Judith Cole
Thursday, 27 February 2014
Wow, wow, wow, unbelievable...
Having been a keen supporter of the WOW petition from the start, I was hoping to get to London today. Unfortunately I wasn't able to and as I was busy couldn't follow proceedings too closely. When I checked in the morning it was to read snippets from the marvellous John McDonnell MP and all those of his ilk with any integrity and to see pictures of a disgracefully empty House of Commons. There was a similar poor showing for the Pat's Petition and Bedroom Tax Debates so I thought I could predict what would happen next. The MPs who care about disabled and sick people would tell their important stories to the handful of Coalition MPs who had been ordered to show up block their ears and spout the party line, and suddenly the chamber would fill for the vote, which would be won by the government. The best we could hope for, I thought, was an increase in the abstentions and rebels, so the majority was reduced.
So I was astonished when I looked on twitter just after the vote to find my timeline full of people saying "the ayes have it". I wasn't the only one to be asking incredulously "have we won?" It was a moment of collective disbelief that this petition that so many of us have worked so hard on, not only got to the House of Commons but was actually PASSED. And then the joy followed, we won, we won, we WON! And we won in a week where the WCA reassessments have been suspended and Atos are pulling out, and in a month where religious leaders have united in condemning the government for taking away the safety net.That's very good news indeed.
Of course, when you look at what happened, it's not a perfect victory. The house was empty for the majority of the debate, and it seemed today the government's tactic was to not even try to defend the indefensible. BUT, two years ago, this government pulled every despicable trick to whip reluctant MPs to vote for welfare reform, and when the House of Lords kept overturning their votes, they forced it through on Royal Privilege. Since then they've lost legal case after legal case, found it increasingly difficult to win votes on welfare reform, and today, it is in black and white in Hansard. The House has resolved to call on the government to commission an independent cumulative impact assessment on the impact of welfare reform and cuts on sick and disabled people. And I'm sure the tactic will be to try and kick this into the long grass, but we won't let them.
We've got them on the run now.
So I was astonished when I looked on twitter just after the vote to find my timeline full of people saying "the ayes have it". I wasn't the only one to be asking incredulously "have we won?" It was a moment of collective disbelief that this petition that so many of us have worked so hard on, not only got to the House of Commons but was actually PASSED. And then the joy followed, we won, we won, we WON! And we won in a week where the WCA reassessments have been suspended and Atos are pulling out, and in a month where religious leaders have united in condemning the government for taking away the safety net.That's very good news indeed.
Of course, when you look at what happened, it's not a perfect victory. The house was empty for the majority of the debate, and it seemed today the government's tactic was to not even try to defend the indefensible. BUT, two years ago, this government pulled every despicable trick to whip reluctant MPs to vote for welfare reform, and when the House of Lords kept overturning their votes, they forced it through on Royal Privilege. Since then they've lost legal case after legal case, found it increasingly difficult to win votes on welfare reform, and today, it is in black and white in Hansard. The House has resolved to call on the government to commission an independent cumulative impact assessment on the impact of welfare reform and cuts on sick and disabled people. And I'm sure the tactic will be to try and kick this into the long grass, but we won't let them.
We've got them on the run now.
Monday, 24 February 2014
The Beginning of the End?
The Atos Stories Collective was formed in 2011 in response to the horror stories that were beginning to emerge at the time. Stories about people like George, who died from a heart attack after Atos twice failed to put him in the work support group or Matthew found fit to work even though he has limited language and understanding of the world, fuelled a desire to act. When Atos threatened to sue its critics we decided we'd like to do something about it. Two of us who met on-line formed the Collective and invited others to join in by sending us their stories. Over the course of six month we received emails, blogposts, and information via social media, and we wrote Atos Stories, The Atos Monologues and Atos Street Theatre.
From 2012 till now, the plays have been published on-line (first at Scribd, and then later at the WOW petition), been used at demonstrations and vigils, as part of a mass action via social media and the main play has been performed by Act Up! Newham. And as time has passed, we've been delighted to see more and more people becoming aware of, and protesting about the Work Capability Assessment and Atos' involvement. Even better, we've heard that Atos has been seeking ways to get out of the contract, a sure sign that a policy has become toxic, something that was confirmed last week. (With typical gall, they claimed it was death threats from the disabled people they've been harassing that have pushed them out, yeah...right)
Today, comes the best news of all. Our friend and brilliant campaigner Sue Marsh posted on her blog that with Atos on the way out, the DWP are scrapping reassessment of WCA's indefinitely till they can find another organisation to take it on. Of course, it's not over yet. People are still getting assessed and unfortunately Atos will stick around for the time being, still using the terrible DWP descriptors and still wrongly finding people fit for work. But at least, this gives those people who have been through the process, and won their appeals a breathing space... And, given the protests Atos has faced and the damage to its reputation, one has to ask whether there's another company willing to take the risk of bidding to run such a discredited process.
It's right to be cautious, but even so this is a major victory in the battle to scrap the WCA. And campaigns are won, bit by bit. It's not the end, but it's the beginning of the end, and for that, tonight, we should all celebrate.
From 2012 till now, the plays have been published on-line (first at Scribd, and then later at the WOW petition), been used at demonstrations and vigils, as part of a mass action via social media and the main play has been performed by Act Up! Newham. And as time has passed, we've been delighted to see more and more people becoming aware of, and protesting about the Work Capability Assessment and Atos' involvement. Even better, we've heard that Atos has been seeking ways to get out of the contract, a sure sign that a policy has become toxic, something that was confirmed last week. (With typical gall, they claimed it was death threats from the disabled people they've been harassing that have pushed them out, yeah...right)
Today, comes the best news of all. Our friend and brilliant campaigner Sue Marsh posted on her blog that with Atos on the way out, the DWP are scrapping reassessment of WCA's indefinitely till they can find another organisation to take it on. Of course, it's not over yet. People are still getting assessed and unfortunately Atos will stick around for the time being, still using the terrible DWP descriptors and still wrongly finding people fit for work. But at least, this gives those people who have been through the process, and won their appeals a breathing space... And, given the protests Atos has faced and the damage to its reputation, one has to ask whether there's another company willing to take the risk of bidding to run such a discredited process.
It's right to be cautious, but even so this is a major victory in the battle to scrap the WCA. And campaigns are won, bit by bit. It's not the end, but it's the beginning of the end, and for that, tonight, we should all celebrate.
Wednesday, 4 September 2013
10,000 Cuts and Counting
The Atos Stories Collective is delighted to support 10,000 Cuts and Counting which will take place on 28th September, 12pm outside 10, Downing St.
Details of the event can be found on the organisers' facebook page, the salient points being as follows:
" the disabled and non-disabled community will gather to remember those who have died and those still suffering as a result of the Government's austerity assault, which particularly affects disabled people.
The memorial will remember those who have died and those living who are having their independence and dignity challenged as a result of austerity, led by disability activists, Occupy activists, David Ison - the Dean of St Paul’s Cathedral, Michael Meacher MP and other representatives."
"The gathering will demand an immediate end to the Work Capability Assessment, as voted for by the British Medical Association, and a New Deal for sick & disabled people based on their needs, abilities and ambitions as outlined in the WOW petition."
"Clothing. Please wear white clothing as a symbol of remembrance. If this is not possible, a white scarf or other small item would be useful. Please also bring a white flower if you would like to lay one in remembrance"
We would urge all who are able to come to London on the 28th and to join in via facebook or twitter using the hashtag #10KCuts
Details of the event can be found on the organisers' facebook page, the salient points being as follows:
" the disabled and non-disabled community will gather to remember those who have died and those still suffering as a result of the Government's austerity assault, which particularly affects disabled people.
The memorial will remember those who have died and those living who are having their independence and dignity challenged as a result of austerity, led by disability activists, Occupy activists, David Ison - the Dean of St Paul’s Cathedral, Michael Meacher MP and other representatives."
"The gathering will demand an immediate end to the Work Capability Assessment, as voted for by the British Medical Association, and a New Deal for sick & disabled people based on their needs, abilities and ambitions as outlined in the WOW petition."
"Clothing. Please wear white clothing as a symbol of remembrance. If this is not possible, a white scarf or other small item would be useful. Please also bring a white flower if you would like to lay one in remembrance"
We would urge all who are able to come to London on the 28th and to join in via facebook or twitter using the hashtag #10KCuts
Thursday, 20 June 2013
A night to remember
There's nothing nicer for a writer than seeing their work in print or being performed. So it was an absolute treat to travel to London last night to watch the world premiere of Atos Stories as performed by Act Up! Newham.
When we first conceived the idea of a play about Atos, the intent was always to make the work public and encourage others to perform it in their own communities. We were a tad naive about how easy this might be. The professional theatre companies we approached were interested, but the piece was either not quite their thing, or they were struggling with resources and needed help with fundraising. Despite being a collective, we're not a proper organisation, we're writers with busy lives (one of us with health problems), so unfortunately we've not been able to help in this regard. We have managed to have some success with getting the Atos Monologues out there as they are relatively easy for anyone to use/read (they've been performed in Leeds, at Greenbelt, been used in a mass read that involved performances in Oxford, Cardiff, podcasts, livestreaming and tweeting, and podcast by My Life My Choice. But it's been much harder with Atos Stories which is a proper play that needs actors, props, a bit ot technology and a director.
Fortunately, one of our early contacts was Act Up! Newham - a small inclusive theatre company based in East London. We were really excited when we met them last year, as a) they were enthusiastic about the script and b) they're based in Newham the site of the Olympics/Paralympics stadium. Since Atos' sponsorship of both events was one of the triggers for writing the play, we had high hopes that perhaps a performance might be linked with the opening ceremony. That too was naive - we really hadn't thought through how much work it takes to get a play like this ready for performance. Still as the year progressed, Act Up!Newham kept us posted about their rehearsals and we were thrilled when they were given an opportunity to perform at the Newham Council Christmas festival. Sadly Newham pulled the plug on this as they felt the play was too "unfestive" - we disagreed (& after last night even more so), and were glad that Act Up! Newham didn't let it put them off.
So last night, was special in several ways. The company were at last able to perform the play after that setback. The performance was in Newham as part of an event looking at the legacy of the Paralympics AND it was the world premiere.
And it was terrific. Act Up! Newham is an inclusive company with members with and without disabilities. Some of the members have limited speech, so the company cleverly adapted the play so everyone could take part. They cut some scenes, adapted others, used the technique of someone with limited speech saying something and the actor they were playing the scene with repeating the line as a question. The physical aspects of the play worked beautifully and as an ensemble they performed with great gusto. The whole point of Atos Stories is that everyone who performs is part of the Collective and everyone can make the play their own. I absolutely loved it. Stand out scenes were the menacing "We will shop you" opening as the cast threatened Ian Dury before he fought back with his rhythm stick; the "Congratulations" song when Atos found people fit to work; the three wise monkeys (See no Evil about Atos etc) which is a stunning visual, and the dramatic I'm Spasticus. We'd imagined people singing it, but reading the lines gives the song a whole a new energy. "Never underestimate the power of the Spasticus" indeed.
All in all it was a marvellous evening. The play was part of a series of events organised by E13 People United, looking at disability and community life in Newham. A second performer, Ju Gosling, treated us to a wonderful reflection on what it means to be normal. Afterwards we had round table discussions asking questions about "what is normal?", "what was good and bad about the Paralympics?", "how can communities be more inclusive?" A stimulating conversation, that gives me great heart. Disabled people are facing SO much crap at the moment, it was great to see so much positive energy, ambition and desire to make change happen. I'd really like to thank everyone who attended for the warm welcome and for also letting me plug the WOW Petition.
And a huge thank you to Act Up! Newham, for working so hard and giving us such a memorable performance, here's a clip from a rehearsal earlier this year
It was a great night and a real in your face to the DWP, Atos, IDS. The people united will never be defeated - and you can never, ever underestimate the power of the Spasticus!
The Atos Stories Collective is open to anyone who wants to join in. Anyone anywhere can use our material to act against Atos in a theatre, library, street corner, at a community event, festival, or protest. So please do feel free to download them here And get in touch so we can spread the word about your plans. BE part of the Collective!
When we first conceived the idea of a play about Atos, the intent was always to make the work public and encourage others to perform it in their own communities. We were a tad naive about how easy this might be. The professional theatre companies we approached were interested, but the piece was either not quite their thing, or they were struggling with resources and needed help with fundraising. Despite being a collective, we're not a proper organisation, we're writers with busy lives (one of us with health problems), so unfortunately we've not been able to help in this regard. We have managed to have some success with getting the Atos Monologues out there as they are relatively easy for anyone to use/read (they've been performed in Leeds, at Greenbelt, been used in a mass read that involved performances in Oxford, Cardiff, podcasts, livestreaming and tweeting, and podcast by My Life My Choice. But it's been much harder with Atos Stories which is a proper play that needs actors, props, a bit ot technology and a director.
Fortunately, one of our early contacts was Act Up! Newham - a small inclusive theatre company based in East London. We were really excited when we met them last year, as a) they were enthusiastic about the script and b) they're based in Newham the site of the Olympics/Paralympics stadium. Since Atos' sponsorship of both events was one of the triggers for writing the play, we had high hopes that perhaps a performance might be linked with the opening ceremony. That too was naive - we really hadn't thought through how much work it takes to get a play like this ready for performance. Still as the year progressed, Act Up!Newham kept us posted about their rehearsals and we were thrilled when they were given an opportunity to perform at the Newham Council Christmas festival. Sadly Newham pulled the plug on this as they felt the play was too "unfestive" - we disagreed (& after last night even more so), and were glad that Act Up! Newham didn't let it put them off.
So last night, was special in several ways. The company were at last able to perform the play after that setback. The performance was in Newham as part of an event looking at the legacy of the Paralympics AND it was the world premiere.
And it was terrific. Act Up! Newham is an inclusive company with members with and without disabilities. Some of the members have limited speech, so the company cleverly adapted the play so everyone could take part. They cut some scenes, adapted others, used the technique of someone with limited speech saying something and the actor they were playing the scene with repeating the line as a question. The physical aspects of the play worked beautifully and as an ensemble they performed with great gusto. The whole point of Atos Stories is that everyone who performs is part of the Collective and everyone can make the play their own. I absolutely loved it. Stand out scenes were the menacing "We will shop you" opening as the cast threatened Ian Dury before he fought back with his rhythm stick; the "Congratulations" song when Atos found people fit to work; the three wise monkeys (See no Evil about Atos etc) which is a stunning visual, and the dramatic I'm Spasticus. We'd imagined people singing it, but reading the lines gives the song a whole a new energy. "Never underestimate the power of the Spasticus" indeed.
All in all it was a marvellous evening. The play was part of a series of events organised by E13 People United, looking at disability and community life in Newham. A second performer, Ju Gosling, treated us to a wonderful reflection on what it means to be normal. Afterwards we had round table discussions asking questions about "what is normal?", "what was good and bad about the Paralympics?", "how can communities be more inclusive?" A stimulating conversation, that gives me great heart. Disabled people are facing SO much crap at the moment, it was great to see so much positive energy, ambition and desire to make change happen. I'd really like to thank everyone who attended for the warm welcome and for also letting me plug the WOW Petition.
And a huge thank you to Act Up! Newham, for working so hard and giving us such a memorable performance, here's a clip from a rehearsal earlier this year
It was a great night and a real in your face to the DWP, Atos, IDS. The people united will never be defeated - and you can never, ever underestimate the power of the Spasticus!
The Atos Stories Collective is open to anyone who wants to join in. Anyone anywhere can use our material to act against Atos in a theatre, library, street corner, at a community event, festival, or protest. So please do feel free to download them here And get in touch so we can spread the word about your plans. BE part of the Collective!
Sunday, 16 June 2013
Atos Stories premieres!!! (Finally)
Readers of this blog will know that at Christmas, our friends Act Up! Newham were all set to perform Atos Stories as part of the Council's Newham event. Unfortunately things didn't quite go to plan - at the last minute the Council stopped the performance as they deemed it unsuitable for a festive occasion.
Thankfully, Act Up! Newham haven't let this setback defeat them. This week they will be performing their accessible version of Atos Stories at the E13 People United celebration of Disability and Community Life.
Judging from this sneak preview - it's going to be great.
So if you're in or around E13 on Wednesday, why not pop along...and spread the word!
Thankfully, Act Up! Newham haven't let this setback defeat them. This week they will be performing their accessible version of Atos Stories at the E13 People United celebration of Disability and Community Life.
Judging from this sneak preview - it's going to be great.
So if you're in or around E13 on Wednesday, why not pop along...and spread the word!
Thursday, 16 May 2013
A doctor comes clean...
Today something very important happened. An ex-Atos Doctor came clean about the unethical practices we've all been talking about and the BBC have picked up the story. It's too early yet to say whether this is a turning point in the fight against ESA, but it's certainly an important step. We'd like to thank Dr Greg Wood for not only listening to his conscience and resigning from Atos Healthcare, but making sure his story is heard. And as a result, the BBC has been talking to disabled people all day. For once, the rhetoric of people on benefits = scroungers has been overturned. Hopefully, people will begin to see how disabled people are being victimised by Atos,the DWP and the government.
But of course, some of us have been telling Atos Stories for a while now. We're delighted to announce our play will be premiered on 19th June 2013 between 6 and 8.30pm as part of the Harold Road Disability and Community Life event . We're particularly pleased because this event concludes a season reflecting on the impact of the Paralympics. Since one of our motivations for writing Atos Stories was the scandal that Atos sponsored that event, we can't think of a more fitting place to premiere. If you're in London on the 19th please do try and get along. And if you're not please help us spread the word.
But of course, some of us have been telling Atos Stories for a while now. We're delighted to announce our play will be premiered on 19th June 2013 between 6 and 8.30pm as part of the Harold Road Disability and Community Life event . We're particularly pleased because this event concludes a season reflecting on the impact of the Paralympics. Since one of our motivations for writing Atos Stories was the scandal that Atos sponsored that event, we can't think of a more fitting place to premiere. If you're in London on the 19th please do try and get along. And if you're not please help us spread the word.
Wednesday, 10 April 2013
Atos Mass Read Round Up - Part 3
6.30pm After a slight panic about the livestream link for Joy and Cova's broadcast at 7pm, which Lisa, @living_as_if fielded, we had the link all ready for 7pm. In the meantime, while I'd been cooking tea Melanie, @intastellabella had concluded tweeting David's story. We were all set for the livestream at 7pm, but then we had another technical hitch. Somehow, I managed to miss the beginning, and got distracted by something at home, so missed what Joy and Cova said at the end. But after a few tweets and emails, we sorted it out and found the livestream they'd recorded could be retweeted. You can find their powerful, angry broadcast here
7.15pm Whilst that was going on, we were able to retweet the story Melanie tweeted and catch up with Lisa @living_as_if 's own personal story. As a member of the collective collecting stories, this was the first time she'd shared her own. It has a trigger warning, but for once, it's an example of an Atos staff member showing a bit of compassion. It does happen, and we should celebrate those people who are able to be humane in the midst of all the brutality.
7.30pm We were able to put up our first podcast as Gram Davis, @Poplarpersona offers wise reflections about the whole WCA/ESA/Atos/DWP experience in between reading stories that speak particularly to him. We hit another technical glitch as the first reading came across rather echoey. But by 8pm it was all sorted, and it's well worth a listen.
At 8.45pm we began to draw the day to a close. We decided to end, as the Atos Monologues does, by tweeting Karen Sherlock's story on our timeline. I've read this story before, and it always makes me cry. Karen contacted us last year to tell us what she'd experienced. We were so delighted when she'd won her appeal, that her death 9 days later was all the more shocking. As I tweeted, one line jumped out from all the others
" Want to know how they can consider someone who is in hospital on dialysis 3 times a week& recovering inbetween is able to work".
As someone tweeted back to us "Who on earth would do that?" Who indeed?
We finished at 9.30pm 12 hours after we started, remembering Karen, and all those who have suffered, and died under the WCA.
And then, just as we were heading for bed, Jane and Rick from the WOW petition, sent us this last powerful podcast - please be warned, the first story is extremely shocking. But it needs to be told.
All in all, Atos Mass Read has been an amazing experience. We got stories out in a multitude of ways, which we hope reached people who might not have heard of the issues before. We also noticed we'd picked up a couple of trolls last night, a sure sign that all the retweets yesterday had an impact. We'd like to thank all our contributors for their efforts, possibly a first in multi-media artistic protest!
WHAT NEXT?
The stories we've been telling are painful, difficult, shocking, horrifying, but we didn't put them out there for people to despair. All our contributors wanted us to share their stories so that others won't have to suffer like this.
So what can you do now?
WRITE to your MP, to Iain Duncan Smith, David Cameron, George Osborne, Esther McVey to tell them what you think about the WCA, and Atos. Tell them it's time to End ESA Now.
JOIN the ESA End Game Campaign
SIGN the WOW Petition and get involved in the battle to save welfare
FOLLOW Bedding Out this week and Fit to Work: Poets Against Atos
BE PART of the Resistance to the War on Welfare, counter every piece of propaganda you read. Challenge every lazy assertion you hear. Pass on these stories wherever you can. Read, blog, podcast, livestream, tweet, do a live event - download them here
Together we can END ESA NOW!
" Want to know how they can consider someone who is in hospital on dialysis 3 times a week& recovering inbetween is able to work".
As someone tweeted back to us "Who on earth would do that?" Who indeed?
We finished at 9.30pm 12 hours after we started, remembering Karen, and all those who have suffered, and died under the WCA.
And then, just as we were heading for bed, Jane and Rick from the WOW petition, sent us this last powerful podcast - please be warned, the first story is extremely shocking. But it needs to be told.
All in all, Atos Mass Read has been an amazing experience. We got stories out in a multitude of ways, which we hope reached people who might not have heard of the issues before. We also noticed we'd picked up a couple of trolls last night, a sure sign that all the retweets yesterday had an impact. We'd like to thank all our contributors for their efforts, possibly a first in multi-media artistic protest!
WHAT NEXT?
The stories we've been telling are painful, difficult, shocking, horrifying, but we didn't put them out there for people to despair. All our contributors wanted us to share their stories so that others won't have to suffer like this.
So what can you do now?
WRITE to your MP, to Iain Duncan Smith, David Cameron, George Osborne, Esther McVey to tell them what you think about the WCA, and Atos. Tell them it's time to End ESA Now.
JOIN the ESA End Game Campaign
SIGN the WOW Petition and get involved in the battle to save welfare
FOLLOW Bedding Out this week and Fit to Work: Poets Against Atos
BE PART of the Resistance to the War on Welfare, counter every piece of propaganda you read. Challenge every lazy assertion you hear. Pass on these stories wherever you can. Read, blog, podcast, livestream, tweet, do a live event - download them here
Together we can END ESA NOW!
Atos Mass Read Round Up -Part 2
2.30pm I got back from town to catch up with @nellmk2 had tweeted Nelson, Tim and John's stories. Meanwhile @living_as_if had done an excellent job of curating in my absence, and it was pleasing to see so many retweets throughout the morning.
I was very excited to discover the wonderful Act Up! Newham had sent us this video, of their rehearsal the previous night. Act Up! have been working on our play Atos Stories since last summer and readers of this blog will be aware their first performance was cancelled at Christmas. It's great to see this hasn't deterred them, and judging by this video we are in for a treat when they finally get to go on stage on the 19th June.
By 3.30pm we'd retweeted all the stories @nellmk2 tweeted earlier and it was time to release the poems that the very wonderful Fit to Work:Poets Against Atos had sent us. First up was Dan Holloway, who had joined us earlier in Oxford, perfoming his poem The Mentalist. It was then we hit our first technical glitch of the day, as when I tweeted the audiofiles I'd been sent I realised the links didn't work. Thankfully Mark Burnhope @mkburnhope was on the case, and by the evening we were able to post Nul Pwn by Kit Fryatt and Tock by Sarah James.
At around 4.30pm I was taking a breather when I realised that Melanie @intastellabella had begun to tweet Kate's story - as she said, "I can't wait till six some things need action now"
Again, reading this line by line was very moving, here's a snapshot:
Kate ends by asking "how much fighting can you do?" It's a question we can all often ask...
By now it was time for tea, so we took another break. The rest of the day will be told in Part 3.
I was very excited to discover the wonderful Act Up! Newham had sent us this video, of their rehearsal the previous night. Act Up! have been working on our play Atos Stories since last summer and readers of this blog will be aware their first performance was cancelled at Christmas. It's great to see this hasn't deterred them, and judging by this video we are in for a treat when they finally get to go on stage on the 19th June.
By 3.30pm we'd retweeted all the stories @nellmk2 tweeted earlier and it was time to release the poems that the very wonderful Fit to Work:Poets Against Atos had sent us. First up was Dan Holloway, who had joined us earlier in Oxford, perfoming his poem The Mentalist. It was then we hit our first technical glitch of the day, as when I tweeted the audiofiles I'd been sent I realised the links didn't work. Thankfully Mark Burnhope @mkburnhope was on the case, and by the evening we were able to post Nul Pwn by Kit Fryatt and Tock by Sarah James.
At around 4.30pm I was taking a breather when I realised that Melanie @intastellabella had begun to tweet Kate's story - as she said, "I can't wait till six some things need action now"
Again, reading this line by line was very moving, here's a snapshot:
Kate ends by asking "how much fighting can you do?" It's a question we can all often ask...
By now it was time for tea, so we took another break. The rest of the day will be told in Part 3.
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